卒業式
シシィ先日は無事に長女の卒業式が執り行われました。私が白血病と告知された時、長女はまだ小学5年生。私に遺伝子変異T315Iが見つかり、造血幹細胞移植の話が出て長女中学1年生、体重は規定の４０キロを超えていたのでドナー採血に来て...
CMLシシィドナー
CMLシシィProfile
Blog Profile: sissi
Living in Tokyo, I work for an airline and I am currently researching dumping symptoms in esophageal cancer at Waseda University Graduate School. I also support patients with chronic myeloid leukemia (CML) and esophageal cancer. I am a CML survivor.
Medical History
June 2012: Diagnosed with CML on my birthday.
March 2014: Detected the T315I gene mutation and given a one-year prognosis.
May 2014: Prepared for umbilical cord blood transplant at a university hospital, but the T315I disappeared.
August 2017: Discontinued targeted therapy.
Current: Leukemia cells are still detected in tests, but I am continuing treatment-free remission (TFR).
Patient Advocacy Activities
Representative of a CML patient support group
Board member of an esophageal cancer patient support group
IRB at a cancer hospital