タシグナ断薬丸３年
シシィこんにちは、シシィです！私事ではありますが８月７日は慢性骨髄性白血病の分子標的薬タシグナ内服をストップして丸３年経過無治療４年目に突入です！思い起こせば2012年に慢性骨髄性白血病と診断され2014年にはT315Iの遺伝...
CMLシシィタシグナ
Profile
Blog Profile: sissi
Living in Tokyo, I work for an airline and I am currently researching dumping symptoms in esophageal cancer at Waseda University Graduate School. I also support patients with chronic myeloid leukemia (CML) and esophageal cancer. I am a CML survivor.
Medical History
June 2012: Diagnosed with CML on my birthday.
March 2014: Detected the T315I gene mutation and given a one-year prognosis.
May 2014: Prepared for umbilical cord blood transplant at a university hospital, but the T315I disappeared.
August 2017: Discontinued targeted therapy.
Current: Leukemia cells are still detected in tests, but I am continuing treatment-free remission (TFR).
Patient Advocacy Activities
Representative of a CML patient support group
Board member of an esophageal cancer patient support group
IRB at a cancer hospital